What can I do

Csvi-Ms.net recommends making sure the health care professional you see for a CCSVI screening has a copy of this PDF to make sure the ultrasound or MRI is performed correctly http://csvi-ms.net/files/multiple%20sclerosis-USG.pdf I’d believe this document was originally written by Dr. Zamboni.

This is a post that was written by Joan Beal on the Facebook group CCSVI in Multiple Sclerosis.  Joan’s post is titled CCSVI in Multiple Sclerosis: What can I do???

Welcome to CCSVI in MS. This is a place for updates about CCSVI research and press/media releases. I set up this page to keep people current on information regarding CCSVI. Stay tuned for updates and more news.

I’m Joan, wife of Jeff Beal. Not a doctor, no one special, just the loving wife of an MS patient who read Dr. Zamboni’s groundbreaking research on the discovery of CCSVI in MS last year. Jeff and I are in Part II of the CTV documentary. We’re getting alot of emails since the documentary aired, and we want to let folks know what they can do.

I brought Dr. Zamboni’s research papers to my local universities, and that is what I am asking you to do, too…. no one knew what I was talking about last year, I got alot of disbelieving feedback and was turned down by many universities- but a doctor at Stanford agreed to test and treat my husband.

1. Print out the research and take in to your local universities. Here is the paper:
http://jnnp.bmj.com/content/80/4/392.full
Call the vascular departments, interventional radiology departments and neurology departments and tell them they should study venous stenosis and reflux in Multiple Sclerosis patients. Volunteer to let them test you for jugular vein stenosis. This is going to take all the patients and caregivers working together.

2. Call your local MS societies and tell them they need to fund research into CCSVI NOW.

3. Write letters to the medical journalists of your local newspapers and include information and links to the CTV story, Dr. Zamboni’s research paper and the Globe and Mail story. Let people know that there is exciting new research into the cause of MS, and we need to investigate this.
http://www.theglobeandmail.com/news/national/researchers-labour-of-love-leads-to-ms-breakthrough/article1372414/

4. Come join the community of MS patients and caregivers at ThisIsMS.com.
http://www.thisisms.com/forum-40.html
We’re all helping each other. There are doctors in California, Poland and Italy performing the Liberation procedure now. We need more!! We have people organizing efforts on the East Coast of America, in Australia, Poland, the UK and more….come help us spread the word of CCSVI in MS. Learn all you can about Dr. Zamboni’s groundbreaking discovery.

5. Look for other MS patients and caregivers in your town, state, province, country. Connect with them and bring the research to doctors and universities together…there is strength in numbers.

Thank you for considering all of this- If I could do this for my husband, I know you can do this for yourself or your loved one.
There is so much we can do together!
My hope and prayer is that we end the suffering of MS….from my family to yours-
Joan/Cheerleader and Jeff